Children with life-threatening and terminal illnesses- and their families- require a unique kind of care to meet a wide variety of needs. This book, now in its third edition, provides an authoritative source for the many people involved in the care of dying children.
Written by leading
authorities in pediatrics and palliative medicine, this comprehensive resource emphasizes practical topics and covers the entire range of issues related to the hospice care from psychological stress to pain and symptom management. The text has been fully updated and includes an international
perspective chapter and a chapter written cy Children's Hospice International with detailed all-inclusive care plans.
Archbishop Desmond Mpilo Tutu, Archbishop of Cape Town, South Africa Anglican Church of Southern Africa: Foreword
Introduction
Part I: Issues in Clinical Management
1. Children's Understanding of Death
2. Pain and Symptom Management
3. Psychosocial Aspects of
Serious Illness in Childhood and Adolescence: Responding to the Storm
4. The Spectrum of Palliative Nurse Care of Children and Their Families Across Settings
5. Neonatal Death
6. Care for the Child with HIV Infection and AIDS
Part II: Support Systems
7. Caring for Bereaved
Parents
8. After a Child Dies: Helping the Siblings
9. Spiritual Care of Children and Parents
10. Staff Support in Pediatric Hospice Care
11. Volunteers in Pediatric Palliative Care Programs: Changing Medical Environment
12. The Essential Role of School Bereavement
Programs
13. Therapeutic Play and Creative Arts: Helping Children Cope with Illness, Death and Grief
14. The Primary Care Physician's Role in Hospice Care
Part III: Differnet Contexts, Different Lessons
15. Children's Hospice and Palliative Care Worldwide
16. Pediatrics
and Palliative Care: Learning from One Another
17. Children's Hospice International Program for All-Inclusive Care for Children and Their Families
18. Palliative Care Across a Pediatric Post Acute Healthcare System
19. Ethical Decision Making at the End of Life
20. Incorporating
Children in an Adult Hospice Program
21. Death-Related Literature for Children and Adolescents: Selected, Annotated, and with Guidelines and Resources for Adults
Appendix
Index
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Ann Armstrong-Dailey is a Founding Director of Children's Hospice International, VA.
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